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Real life stories

Living with rare autoinflammatory diseases can be different for everyone. We have invited patients and their families to share their experiences of living with these conditions. Watch the videos below to find out more.


Living with Familial Mediterranean fever

"They sent me to lots of doctors. I remember going from hospital to hospital as a child.” Watch Noam’s story about being diagnosed with Familial Mediterranean fever and how the diagnosis helped him to lead a healthier life with the disease.

February 2017 - GLDEIM/ACZ885/0206


Living with Systemic Juvenile Idiopathic Arthritis

"There were 7 years of hard work, torture and all that. And now we thank God because we have a normal life." Watch Jose Jesus Lucas, and his wife Lucero Marin, describe the ups and downs of their son’s journey with Systemic Juvenile Idiopathic Arthritis.

A minute change in DNA can have big impact

Here’s our current understanding of the science behind the tiny DNA change(s) that lead to rare periodic fevers.

Periodic Fevers

February 2016 - GLDEIM/ACZ885/0059