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RareConnect is a safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents...Read more
PRINTO is a not for profit, non governmental, international research network with the goal to foster, facilitate and co-ordinate the development, conduct, analysis, and reporting ... Read more
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with...Read more
The Italian Association for Periodic Fevers (AIFP, Associazione Italiana Febbri Periodiche), was founded in 2006. AIFP is an APS (Associazione di Promozione Sociale) promoting ...Read more
The Association for Paediatric Rheumatoid Diseases (AMRI, Associazione per le Malattie Reumatiche Infantili) is a non-profit organisation who supports children affected by paediatric... Read more
CORD is Canada's national network for organizations representing all those with rare disorders. CORD works with governments, researchers, clinicians and industry ...Read more
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people...Read more
Ligue Genevoise contre le Rhumatisme (LGR) is a centre of competence for osteo-articular diseases. It is a non-profit organisation, comprised of a multidisciplinary...Read more
This Project aims to sensitize pediatricians and pediatric rheumatologists to the prompt recognition of Autoinflammatory Diseases; provide proper information to families affected...Read more
NORD is an independent 501(c)(3) non-profit patient advocacy organisation dedicated to individuals with rare diseases and the organisations that serve them. NORD is committed to the identification...Read more
Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients...Read more
The Rheumaliga beider Basel is a non-profit patient advocacy organisation that represents the interests of people affected by rheumatologic diseases. The organisation works... Read more
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