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RareConnect is a safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents...Read more
PRINTO is a not for profit, non governmental, international research network with the goal to foster, facilitate and co-ordinate the development, conduct, analysis, and reporting ... Read more
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with...Read more
The Italian Association for Periodic Fevers (AIFP, Associazione Italiana Febbri Periodiche), was founded in 2006. AIFP is an APS (Associazione di Promozione Sociale) promoting ...Read more
The Association for Paediatric Rheumatoid Diseases (AMRI, Associazione per le Malattie Reumatiche Infantili) is a non-profit organisation who supports children affected by paediatric... Read more
CORD is Canada's national network for organizations representing all those with rare disorders. CORD works with governments, researchers, clinicians and industry ...Read more
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people...Read more
Ligue Genevoise contre le Rhumatisme (LGR) is a centre of competence for osteo-articular diseases. It is a non-profit organisation, comprised of a multidisciplinary...Read more
This Project aims to sensitize pediatricians and pediatric rheumatologists to the prompt recognition of Autoinflammatory Diseases; provide proper information to families affected...Read more
NORD is an independent 501(c)(3) non-profit patient advocacy organisation dedicated to individuals with rare diseases and the organisations that serve them. NORD is committed to the identification...Read more
Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients...Read more
The Rheumaliga beider Basel is a non-profit patient advocacy organisation that represents the interests of people affected by rheumatologic diseases. The organisation works... Read more
KOURIR is the French parent association for JIA and all kinds of pediatric rheumatic diseases.
Founded in 1992, our mission is to support parents and children...Learn more
KAISZ is active in raising awareness and providing support to those living and or working with an Autoinflammatory disease. KAISZ brings patients and those involved with autoimmune or...Learn more
MIFRAKIM is committed to help children, youth, adults, and elderly with different kinds of Rheumatoid Arthritis as well as their families, and to support them in their daily challenge of...Learn more
ICAN are the association in Ireland that support, advocate and raise awareness of autoimmune and autoinflammatory paediatric diseases.
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FMF & AID is a worldwide non-profit umbrella organization, dedicated to helping
patients and their families to obtain a quick diagnosis, correct treatment, advocating for them and...Learn more
SUNFLOWER Charity Foundation supporting patients with immune system disorders wasestablished in 2006. We work to save lives of children and adults who are suffering of...Learn more
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