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Real life stories

Living with rare autoinflammatory diseases can be different for everyone. We have invited patients and their families to share their experiences of living with these conditions. Watch the videos below to find out more.

A Day in a Rare Life - SJIA

A Day in a Rare Life - FMF

A day in a Rare Life - Center for Autoinflammatory Diseases

A Day in a Rare Life - CAPS & Family

A Day in Rare Life - SJIA


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A minute change in DNA can have big impact

Here’s our current understanding of the science behind the tiny DNA change(s) that lead to rare periodic fevers.

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Periodic Fevers

February 2016 - GLDEIM/ACZ885/0059