Hear from the specialists
Periodic fever syndromes and rare auto inflammatory diseases are not always very well understood and so we have asked some specialists for their expert opinions and advice on what it’s really like to live with these conditions. Watch the videos below to learn more.
Dr. Cattalini on determining the presence of periodic fever syndromes
Periodic fever syndromes are rare diseases, making them difficult to diagnose. Dr. Cattalini, an expert on autoinflammatory conditions, shares his advice on what to do if you suspect your child has a periodic fever syndrome and how to ensure they receive the best care possible.
Prof. Lidar on FMF
Professor Merav Lidar MD, Head of Rheumatology at Sheba Medical Center explains the symptoms, diagnosis and ongoing management of Familial Mediterranean Fever (FMF).
Dr. Feist on SJIA
Eugen Feist, a rheumatologist at the Charité University Hospital in Berlin, explains the effect that disease management and contact with patient advocacy groups (PAGs), can have on the life of a child who is living with SJIA.
Prof. Martini and Mr. Bona on SJIA
Professor Alberto Martini (University of Genoa, Italy) and Mr Gabriele Bona (AMRI Association based in Genoa, Italy) share expert insights on the experience of people who are living with SJIA.
Dr. Hofer on rare autoinflammatory diseases
Michaël Hofer, MD, a paediatric immunologist and rheumatologist based at CHUV, the University of Lausanne, Switzerland, explains the challenges faced by children with a rare autoimmune disease and the common challenges faced with both child patients and their parents.